About the European Genome-phenome Archive (EGA)
The European Genome-phenome Archive (EGA) is a service for permanent archiving and sharing of all types of personally identifiable genetic and phenotypic data resulting from biomedical research projects. The EGA contains exclusive data collected from individuals whose consent agreements authorise data release only for specific research use or to bona fide researchers. The EGA provides the necessary security required to control access, and maintain patient confidentiality, while providing access to those researchers and clinicians authorised to view the data. In all cases, data access decisions are made by the corresponding Data Access Committee (DAC) for a dataset, and not by the EGA.
Further details of EGA's data access policy, system architecture, security and data submission, are described in the introduction to the EGA or The European Genome-phenome Archive of human data consented for biomedical research paper.
Since 2013 and through a collaboration between the European Bioinformatics Institute and the Centre for Genomic Regulation, The European Genome-phenome Archive (EGA) is jointly managed and available at both institutions: EGA-EBI and EGA-CRG
For additional information about the EGA, please contact:
Paul Flicek, Helen Parkinson, Thomas Keane and Dylan Spalding
European Bioinformatics Institute
Arcadi Navarro, Roderic Guigó, Jordi Rambla
Center for Genomic Regulation